Your doctors and nurses are an essential part of your team, but there are a numer of organizations that provide additional support in terms of education and guidance, either directly or indirectly related to your treatment. Below are links to some of these groups.
AdvancedBC.org offers resources for and information about metastatic breast cancer. All content is provided by Musa Mayer, a well-known patient advocate and author.
|American Cancer Society
A well-known organization worldwide, ACS provides information, support and opportunities to get involved in the fight against breast cancer. It includes a very informative section about health insurance. If you need to travel for care, the ACS has Hope Lodgesâ throughout the country, and they also offer a program called the Road to Recovery which provides patients with rides to and from treatment (supported by volunteers).
|American Society of Clinical Oncology
An organization comprised of oncology health care workers that provides detailed information about the most recent cancer research. Its site, Cancer.Net , is a good resource for breast cancer patients, offering education and support.
This site has a plethora of information regarding breast cancer: education, prevention, nutrition, changes in sex and intimacy, wig and hat advice, to name a few.
BCT is a non-profit service that encourages individuals affected by breast cancer to consider clinical trials as a routine option for care. It includes a list all of the U.S-based trials on ClinicalTrials.gov and Cancer.gov that are currently looking for volunteers.
An organization developed in order to give hope and information to cancer patients who may develop fertility issues following cancer treatment.
|Facing Our Risk of Cancer Empowered (FORCE)
FORCE is the only national non-profit dedicated to improving the lives of individuals and families affected by hereditary breast and ovarian cancer.
|Informed Medical Decisions Foundation
The Informed Medical Decisions Foundation has been working for over two decades to advance evidence-based shared decision making through research, policy, clinical models and patient decision aids.
|The Inflammatory Breast Cancer Research Foundation
The Inflammatory Breast Cancer Research Foundation is dedicated to researching the cause of Inflammatory Breast Cancer (IBC), an advanced and accelerated form of breast cancer usually not detected by mammograms or ultrasounds. They offer education and resources for patients and their loved ones as well as grants for scientists studying inflammatory breast cancer.
|National Center for Complementary and Alternative Medicine
Presents educational material about complementary and alternative treatment.
|National Cancer Institute
The governing organization for all things dealing with the various types of cancer.
|National Comprehensive Cancer Network
NCCN is a non-profit alliance of 23 of the world’s leading cancer centers dedicated to improving the quality and effectiveness of care provided to patients with cancer.
Sharsheret, Hebrew for “chain”, is a national not-for-profit organization supporting young women and their families, of all Jewish backgrounds, facing breast cancer.
|Triple Negative Breast Cancer Foundation
TNBC’s mission is to be a credible source for triple negative breast cancer information, a catalyst for science and patient advocacy groups, and a caring community with meaningful services for patients and their families.
|Young Survival Coalition
This site focuses on young women with breast cancer. Their comprehensive glossary of health care terms serves the entire breast cancer community.